Saturday 28th September: 2019 : 17:45 – 20:45

Creating opportunities, Changing lives

SASBAH was formed as an independent charity in 1965,  in response to the growing demand for support services for those with Spina Bifida and/or Hydrocephalus in Sussex.  Our mission is a simple one:

Working with those in Sussex who have Spina Bifida and/or Hydrocephalus to create and develop their best opportunities

Over half a century, we have gradually increased both our services and our membership, so that we now offer support for over 500 people of all ages in the counties of East and West Sussex, and Brighton and Hove.  We deliver a wide range of services and programmes, all based on needs identified by service users themselves, who are represented at all levels of our organisation up to Trustee level, where nearly half of the Trustees are themselves service users.

Recently, we have extended some of our services to people with other disabilities, so that both they and those with the principal conditions we support can benefit from interaction with a wider group, and from the experience of the Sasbah staff.

SASBAH is a tightly managed organisation, currently employing two full-time and 11 part-time paid staff, and with an extensive network of over 170  volunteers, who are trained in the conditions and are crucial to the delivery of such a wide range of services.  In addition, our Trustees exert a strong control over finances. It is a major strength of the organisation that we can achieve this incredible breadth and depth of service provision for an annual expenditure of just £230,000.