The Big Swoove

These are the Charities we are raising money for

Friday 27th September 2019 : 19:00 – 22:00   SANDS, Family Support Work, Aidans Xmas Dinner
Friday 27th September 2019 : 22:15 – 01:15   Early Birth Association, Lindfield Primary Academy PTASt Wilfrids Hospice
Saturday 28th September 2019 : 01:30 – 04:30   St Catherines Hospice, Treat Me Kind – International Animal Charity, The Starr Trust 
Saturday 28th September 2019 : 04:45 – 07:45   League of Friends – Princess Royal Hospital, Swoove Aid, Chailey Heritage Enterprise Centre
Saturday 28th September 2019 : 08:00 – 11:00    Forward Facing, Dame Vera Lynn Children’s Charity, Age UK West Sussex
Saturday 28th September 2019 : 11:15 – 14:15   Jane’s Wish, Kangaroos, Time 4 Children
Saturday 28th September 2019 : 14:30 – 17:30   Eastbourne Mencap, Chestnut Tree House, Seahorses Swimming Club
Saturday 28th September: 2019 : 17:45 – 20:45   Group Strep B Support, Eastbourne Foodbank, SASBAH
Saturday 28th September 2019 : 21:00 – 00:00   Little Lifesavers, Homestart (CHAMS), Sussex Snowdrop Trust
Sunday 29th September 2019 : 00:15 – 03:15   Breast Cancer Now, Crossover Brighton
Sunday 29th September 2019 : 03:30 – 06:30   Rockinghorse, PTEN UKI, Sussex Oakleaf
Sunday 29th September 2019 : 06:45 – 09:45   Oscar’s Wish Foundation, Christmas Wishes, St Peter & St James Hospice
Sunday 29th September 2019 : 10:00 – 14:00   Friends of Embark, Mid Downs Radio, Eastbourne Fibromyalgia & ME Support, Diversifest

  • Sunday 29th September 2019 : 06:45 - 09:45

    We support, empower and care for people towards and at the end of life.

    We provide expert and compassionate hospice care to adults living in Haywards Heath, Burgess Hill, Uckfield, Lewes and the surrounding villages. We also support their families and friends through the challenges of bereavement and grief.

    Our vision

    We want to make a positive difference to the experience of everybody in our community who faces death or bereavement, by offering choice and support through our expert and compassionate care, knowledge and understanding.

    Our mission

    We’ll support you and those important to you to live well towards the end of life by giving compassion, hope and quality care.

    Our Values

    Nurturing

    We care for whole families and each other

    Unified

    We work as one team with one vision

    Transparent

    We act with integrity and honesty at all times
    Tree logo

    Professional

    We strive for excellence, learn from our mistakes and celebrate success

    Empowering

    We encourage innovation and support personal and organisational development
  • Sunday 29th September 2019 : 06:45 - 09:45

    Oscar's Wish Foundation (OWF) is a Registered Charity (1169892) based in Sussex and offers comfort and support to parents, family, friends and siblings who have experienced the devastating loss of a precious baby before, during or shortly after birth.

    OWF launched on 14th February 2015 and was showcased in memory of little baby Oscar Jensen and all babies born too soon. After 18 months of sheer hard work and determination by the Team, OWF gained charitable status on 25th October 2016!

    We are building an amazing team of people who have been bereaved as parents, siblings or family members. We base our organisation on heartfelt, compassionate experiences to educate and raise awareness of loss in such precious times.

    We have a range of resources, information and support programmes. These have been designed to help the many parents, families and siblings who have been on a journey whereby they have experienced the loss of a baby before, during or shortly after birth. We hope that our resources will help guide you through this devastating time and these can be accessed by getting in touch with us via oscarswishfoundation@gmail.com.

  • Sunday 29th September 2019 : 00:15 - 03:15

    Right now, breast cancer is at a tipping point. More women are surviving. But more are being diagnosed than ever before. One in eight women in the UK will face breast cancer in their lifetime. And every 45 minutes, another woman dies from the disease. We’re going to change that. We’re Breast Cancer Now, the UK’s largest breast cancer research charity – and we're dedicated to funding research into this devastating disease.
  • Friday 27th September 2019 : 22:15 - 01:15

    The Early Birth Association is a registered charity and we are here to provide a wide variety of help and support for TMBU and SCBU in PRH, ranging from providing items for the babies and parents on the units to make their hospital stay more homely and comfortable, to funding vital life saving equipment and research. The EBA is run by a group of volunteer parents and family members who have had premature or unwell babies. We’re able to offer help and support to parents who are facing the same worrying experiences that we once faced by regularly visiting the TMBU & PRH SCBU to run informal drop in coffee mornings, and by ensuring the units are stocked up with the items and equipment that they need. Please contact us, or ask on the units to find out when the next drop in coffee mornings are. We are there to meet parents and families on the units to provide an opportunity to discuss any problems or anxieties. We work closely with the nurses and staff to give support and practical help.
    We’re always looking for new supporters and committee members to join us. Whether you have a little time to spare or a lot, your skills and time will be much appreciated and best of all you’ll have fun and help a fantastic local cause.  Please get in touch to talk to us about volunteer supporter roles and opportunities. You can also help us by making a donation and /or holding a fundraising event or activity for us. We’re entirely run by volunteers so any money raised is spent directly for benefit of the neonatal units and the babies and families using them. We’d also like to hear from you if your baby/babies are currently in, or have recently been in the Neonatal Units and you have any feedback on the things provided by The EBA whilst you were there. We are always looking to improve  what we do to support babies and families and your feedback would be very valued so please do contact us. We are also often fundraising for specific projects  – please see our news and events sections for further details.
  • Saturday 28th September 2019 : 11:15 - 14:15

    Time 4 Children is Charity which aims to increase the emotional well-being, self-confidence and self-esteem of emotionally vulnerable children between the ages of 4 and 12 in Mid Sussex and surrounding areas. We do this by providing weekly sessions where children can explore their worries, fears, anxieties or experiences with trained Volunteer Practitioners.

    Why this is important

    Children can find it very hard to express or put into words their thoughts and feelings that can weigh heavily on their young shoulders. Our lasting passion and commitment to supporting children who are trying to cope in times of emotional distress means we are able to make real long term differences to children.

    Play is a child’s natural language and with our support children are enabled to explore their worries and anxieties as well as their abilities in a safe and comfortable environment. We don’t judge children or their families. We do not analyse or interpret.

    Reflective Listening and Non-Directive Play is a gentle and non-threatening, non-diagnostic, safe way of enabling children to express and communicate their feelings through play and by being listened to by a practitioner, with both ears and eyes

    Who can refer us

    Usually schools i.e. Head Teachers, Special Needs Co-Ordinators, Learning Mentors contact us about making a referral for a child but other Family Support Workers and Integrated Prevention and Earliest Help (IPEH) make referrals too, as do School Nurses and Social Workers.

    Our history

    Time 4 Children was established in 2005, after its founder piloted a school project through 2003 to 2004 in Mid Sussex, whilst working with The Children Hours Trust. It became very clear there was little support for the many local children in need of having someone safe to listen to them. The project was hugely successful and as it reached its final days, the time had come to form a charity in its own right. Time 4 Children was born, and received charitable status in October 2005.

    As Time 4 Children has grown we now support children in schools all over Mid Sussex.

    Thanking our supporters

    At Time 4 Children we are proud of what we achieve and are grateful to all who support our work, from Trusts and Charitable Foundations to individual supporters' generosity and time.

    We would also like to thank all the wonderful people who raise funds in aid of Time 4 Children – most recently:

    Allison Willcox Aspiration School of Dance Band of Dads Birchwood Grove Primary School Burgess Hill Blackwell Primary School East Grinstead Brett Hudson Art Brighton College Prep School Association Creation Station Haywards Heath Discover & Be Elan Nursery Heath Court Social Club InChoir InChoon & InSync Lindfield Golf Club Patrick Tilley Personal Training for Health Reflections Nursery Worthing St. Wilfrid’s Church, Haywards Heath Stephen Payne Swoove Team Shaw Tiny Tekkers

  • Saturday 28th September 2019 : 11:15 - 14:15

    Since its infancy in 1994, Kangaroos has developed its diverse range of activities through consultation with our young members and their families. We take a person centered approach offering activities, which as well as being enjoyable, seek to improve and enhance the lives of our members.  Families also benefit by having a well-earned break knowing that their  young person is being well cared for. We run a range of different clubs for specific ages groups and activities are run from a range of local community centres as well as trips out to many exciting and fun venues.

    We currently support children and young adults from age 6 upwards with a wide range of learning difficulties and special needs including autism, cerebral palsy, Down's syndrome, challenging behaviour and complex medical conditions. Activities are requested, approved and paid for in advance to ensure that we have the right staffing in place.

    Before joining, we will discuss your young person’s needs and arrange for you to visit one of our groups before to ensure that Kangaroos is the right place for them.

    If you are interested in your child or young person joining Kangaroos, then please contact:

    Lorna Herrett  lorna@kangaroos.org.uk or Jenny King jennyking@kangaroos.org.uk

  • Saturday 28th September 2019 : 01:30 - 04:30

    Welcome to TREAT ME KIND International . We are an animal protection charity.  We are working on our campaigns which focus on companion animals and donkey welfare. Please consider joining us by signing up to our newsletter. We want to keep you updated on all our latest news and campaigns.  We help to raise awareness about animal welfare in the UK and abroad. Helping to raise awareness about welfare issues through educational campaigns and promoting the humane treatment of animals.
    Our Story During 2014 a group of people founded TREAT ME KIND International and set up the Charity to advocate animal protection and build a universal understanding about human-animal bonds and relationships. As an animal protection organisation we are working to encourage kindness towards them and help end cruelty through our campaigns and programs. We believe that every animal deserves respect, dignity and kindness;
    • Respect – showing empathy and humanity to animals
    • Dignity – respecting and honouring an animal’s life
    • Kindness – nurturing compassion towards animals
  • Saturday 28th September 2019 : 04:45 - 07:45

    A group of Sussex-based fitness instructors are joining forces to raise a whopping £40,000 for local charities this autumn and are challenging YOU to help them meet the ambitious target. Swoove (Sing, Whoop, Move) instructors and enthusiasts from around the area will embark on a 40-hour Swoovathon at Scaynes Hill Millennium Centre, starting at 7pm on Friday 27th September and finishing at 2pm on Sunday 29th September 2019. Swoove Fitness founder and creative director Esther Featherstone, who turned 40 in April, wants to celebrate by hosting the 40-hour event, with the help of as many people as possible. She says: “Swoove Aid has already raised £64,000 for local charities up and down the country. Another amazing £40,000 would boost the awareness, profile and funds of a further 40 local, small charities, many of which don’t have huge fund-raising manpower and can slip under the radar.  “Those taking part are encouraged to challenge themselves and Swoove for at least 3 hours across the marathon…  or any length of time – even 40 hours if they feel they can do it.”  The entry charge to the event is £25, with participants allowed to Swoove for as long as they like.    
  • Sunday 29th September 2019 : 10:00 - 14:00       

    Friends of Embark, is a non profit organisation, established as a Charitable Trust in 2012. The Trust's objectives are:- The relief of those in need by reason of disability.
    • Specifically, to provide quality, secure, stable and well maintained housing, to adults with learning difficulties and disability, within the geographical area of West Sussex.
    • To provide such housing at reasonable cost, at market rates or lower, on a long term basis and to be an understanding landlord to meet the needs of such adults with learning difficulties and disabilities.
  • Friday 27th September 2019 : 22:15 - 01:15

    Our mission is to transform end of life care for the people of Eastbourne, Seaford, Hailsham, Uckfield, Heathfield and all the points in between.

    We serve a population of 235,000 people covering an area of around 300 square miles. Our expert teams work to help people to live well until the end of their lives and to support their family and friends. We provide care in our 20-bed Inpatient Unit, through our Wellbeing service and, increasingly, to families in their own homes.   St Wilfrid's Hospice was opened in 1982 in Mill Gap Road in Eastbourne when outpatients visited once a week for tea. In 1983 the hospice accepted its first inpatients and in 2013 it moved to the purpose-built building on Broadwater Way, equipped with a 20-bed Inpatient Unit and Wellbeing Centre. We continue to provide specialist care for people with any progressive, advanced life-limiting illness. Referrals are made by the patient's GP or other healthcare professionals and care is delivered by a team that includes consultants in palliative medicine, specialist nurses, occupational therapists, physiotherapists, counsellors and social workers. Our mission over the next five years is to continue to reach out and transform end of life care for more people in our catchment area in a range of local settings through our Closer to You campaign. We need your support to do this. We rely on the generous support of our community to help provide this free care to our patients and their families. We want to see a community where people talk openly about dying, live well until the end of their life and where nobody dies alone, afraid or in pain.   
  • Saturday 28th September 2019 : 08:00 - 11:00

    Since the Charity was established in  2001 by Dame Vera Lynn, the Forces Sweetheart, we have helped more than 600 families from across the Southeast who have with children cerebral palsy and other motor learning impairments. Each year in the UK, 1,800 children are born with cerebral palsy. Over the last year we have provided 1,200 hours of hands-on support to our families and 275 hours of Outreach support. Cerebral Palsy is a physical disability that affects movement, balance and posture as well as cognitive, social and communication skills and is often caused by an injury to the brain. Early intervention is important to enable children to learn and develop physically, socially and emotionally, forming the bedrock of the independence that they can achieve later in life. Our story began in late 2000 with the announcement by the national charity Scope, that it would no longer be able to fund its network of School for Parents, facilities providing early intervention services based on the principles of Conductive Education to support parents in raising a pre-school aged child with cerebral palsy or other neurological condition. Understanding the importance of early intervention, and determined not to see the School For Parents at Ingfield Manor, West Sussex, close, Dame Vera together with her friends launched the 'Bluebird Appeal' and raised enough awareness and considerable funds to save the school. If it were not for her efforts, so many children would have lost out on an amazing start. Dame Vera Lynn Children's Charity continued to provide for the early intervention service at Ingfield Manor in collaboration with Scope, until late 2016, when the Charity took a number of decisions to ensure a more sustainable future.  This included formally terminating its collaboration with Scope at Ingfield Manor. In 2017, we embarked on an exciting new chapter in our history when we moved to a new home in Cuckfield, West Sussex, where we are able to continue offering our early intervention services as well as providing more services, activities and help to our families. The Charity receives no statutory funding and is entirely reliant upon the donations it receives from individuals, community groups, companies and charitable trusts. Dame Vera, our President, said:
  • Friday 27th September 2019 : 19:00 - 22:00

    Aidan-hampers-pic1 Aidan-hampers-pic2 Parents Lucy and Simon Pond brought extra festive cheer to young patients and their families at the Royal Alexandra Children’s Hospital (the Alex) in Brighton at Christmas by providing special festive hampers. In memory of their son Aidan, Lucy and Simon set up Aidan’s Christmas Dinner Project and we are very proud to have supported the cause for the last two years, providing festive dinner kits which were delivered to families in the hospital on Christmas Eve. Lucy has been kind enough to write a special blog post about Aidan and the Christmas Dinner Project – here’s her story… “In 2013 we spent Christmas as a family at the Alex. Our little boy Aidan, aged 19 months, was terminally ill with a rare genetic disease call Mitochondrial Disease and he needed a ventilator to stay alive. We knew this would be our last Christmas with our beautiful, brave little boy, and we had to stay with him around the clock as he could not manage a few hours without his ventilator. The dedicated children’s hospital staff are amazing at Christmas and we’ll never forget the warmth of the wonderful nurses, along with a visit from Father Christmas on the ward. Alas, due to logistical issues, a Christmas dinner was not provided for families unfortunate enough to have a sick child in hospital. Fortunately my mum was able to get to Asda, battled the queues and amazingly cobbled together a lunch in the Ronald Macdonald House (home from home accommodation located opposite the Alex) kitchen. Aidan passed away at the Alex on 1st March 2014, and in his memory, it was our overwhelming aim to provide funding of a Christmas dinner at the Alex for the future. We felt this would leave a legacy for Aidan and the brilliant nurses who cared for him. In the summer of 2014, we met with the head of nursing at the Alex, along with Rockinghorse Children’s Charity, to talk about our experience. We came up with the idea of a Christmas Dinner Kit, containing everything a family needs to make special meal just by heating it up – the Aidan’s Christmas Dinner Project was born. We immediately started fundraising and to date, we have raised over £6,000. So far, this has enabled us to provide 40 Christmas Dinner kits in 2014, and 55 kits in 2015, which included families with sick babies being cared for in the neighbouring Trevor Mann Baby Unit. We know that the wards try to get as many children home at Christmas as possible, and this might mean getting discharged Christmas Eve night or even Christmas day morning. For this reason, the kit is transportable and families can also enjoy it at home. Some of the items included in the hampers are; peeled and chopped potatoes and seasonal vegetables, a smoked chicken (which can be eaten hot or cold), stuffing, pigs in blankets, ready to heat gourmet gravy, a Harvey’s Brewery Christmas Pudding, plus napkins and crackers. We also include a gift for mums and dads (this was important because the children receive so many presents, but parents are often forgotten about). There is also a tree decoration to remember Aidan by, hand made by our friends and family. For Christmas 2015, we also had a wonderful gesture from the Jones family (pictured above), who gave up their Christmas Day to cook all the dinners for families who could not leave their child to cook it themselves. Clare Jones and her family did a superb job of providing approximately 30 cooked and plated dinners, and Clare had this to say about her family’s very unique Christmas Day: “My husband, two kids and myself had such a great day getting the Christmas lunches ready for those at the Alex. We were so warmly welcomed by the staff, parents and patients, and the hampers were a delight to cook, very easy and delicious and so full of goodies! When we arrived, I met a few parents before getting to grips with the oven and kitchen facilities. Meanwhile, my husband and children got the Christmas dinner orders. I couldn’t have been prouder of my children who quickly worked out what to do, and by the end of the day they were running around the wards, delivering puddings and collecting plates – I burst with pride thinking about it. By the time the last plate was washed and our bags were packed, I felt a real sense of achievement. One of my main aims was to make Christmas Day feel special to the patients and parents and judging by the lovely feedback we received, I think we did that.  We left mid-afternoon and so had plenty of the day left to enjoy Christmas with our families. The whole experience was a delight from start to finish and will be something that I will never forget, an opportunity that I am very grateful for my family and I to have received. Thank you to everyone who was so brilliant to us on Christmas Day!” Simon and I are so proud of this project. To think that two years ago, there was no option for families to have Christmas Dinner if they were in hospital with their child. We would also like to thank the volunteers sourced by Rockinghorse who helped make up the 55 hampers at Middle Farm (our sponsor). This included packing them, wrapping them and driving them to the hospital on Christmas Eve. We are eternally grateful to Louise at Rockinghorse, who did a fantastic job of finding a sponsor for the kits, and supports our project whole heartedly. In addition a special thanks should be given to Caroline at Middle Farm, Lewes, who agreed to provide the hampers for not only this year but every year. What has touched me the most, is that in between Christmas 2015 and New Year, a number of donations were pledged by families who had received a hamper. They were in a situation they never dreamed of being in, and yet they were so grateful to receive a kit, they donated to help other people who will sadly find themselves in a similar situation this year. Together with the support of Rockinghorse and Middle Farm, we plan to make the project bigger and better each year – and what a legacy for Aidan, our very special little boy. For more information about the project, or to make a donation, please visit: www.justgiving.com/aidanschristmasdinnerproject2016 Lucy, Simon and Evie Pond
  • Saturday 28th September 2019 : 14:30 - 17:30

    Chestnut Tree House is a children’s charity providing hospice care services and community support for children and young people with progressive life-shortening conditions throughout East and West Sussex, Brighton and Hove and South East Hampshire.

    Our 15th birthday!

    During 2018 we celebrated Chestnut Tree House’s 15th birthday – 15 years of caring for children and young people with life-shortening conditions, and their families, in East and West Sussex and South East Hampshire. You can find out more about our celebrations here.

    Our latest films

    Please watch this film to find out how we help Charlie and his family.

    Virtual Tour

    Watch the video below to be taken on a virtual tour through the grounds and facilities at Chestnut Tree House.

    The hospice

    There are potentially 1,000 families with life-limited children in Sussex. Chestnut Tree House offers support for the whole family including psychological and bereavement support, end of life and short break care and sibling support. It currently costs over £4 million each year to provide all the care services offered by Chestnut Tree House. Families are never charged for their care and less than 6p in every pound is funded by the government, so we rely heavily on the generosity, help and support of the people of Sussex. At Chestnut Tree House our goal is to provide the best quality of life for children, young people and their families, and to offer a total package of practical, social and spiritual support throughout each child’s life, however short it may be.

    Our care services

    • Assessment, advice and information for children and young adults with life-limiting or life-threatening conditions 24 hours per day. • Specialist short breaks, emergency and end of life care provided at Chestnut Tree House 24 hours per day. • Support for the entire family following diagnosis through the whole disease process by the multidisciplinary team at Chestnut Tree House. • Hospice at home and community care services for children and families in their own homes throughout East and West Sussex and South East Hampshire. • Bereavement support which includes befriending, counselling and spiritual care. • Support and advice on the transition from paediatric palliative care services to adult services. To find out more about the care services we provide, visit the care section of our website.

    Our fundraising standards

    We are registered with the Fundraising Regulator. We are committed to high standards and we adhere to the Fundraising Code of Practice. We agree to ensure our fundraising is legal, open, honest, fair and respectful. Read some of our fundraising policies.

    Local Offer

    West Sussex County Council requires short break providers to display information about their services which you can read all about on the Local Offer website.

  • Sunday 29th September 2019 : 03:30 - 06:30

    Rockinghorse is a Brighton-based charity that has been supporting children for over 50 years. It was set up in 1967 by Dr Trevor Mann, who recognised there was a real need for additional resources to improve healthcare services for sick children and babies.

    At Rockinghorse Children’s Charity, our aim is to improve the lives of sick children throughout Sussex.

    We are the official fundraising arm of the Royal Alexandra Children’s Hospital (the Alex) where we raise money for life-saving and cutting-edge medical equipment, while ensuring that children are treated in an environment better suited to their needs. We also support the Trevor Mann Baby Unit (TMBU) based at the Royal Sussex County Hospital in Brighton and its sister site, the Special Care Baby Unit (SCBU) at the Princess Royal Hospital in Haywards Heath. Find out more about the hospitals we support by clicking on the pictures below.

    We believe no matter where they are, children should always be allowed to be children.

    Working in partnership with the Alex, TMBU and SCBU, we strive to make services stimulating, cutting edge and accessible for the many babies, children and teenagers who need them. We do not receive any government funding and so we rely on the generous support of individuals, community groups, companies and trusts; people like you.
  • Saturday 28th September: 2019 : 17:45 - 20:45

    “The foodbank was there when we really needed it, it was an absolute lifeline.” We don’t think anyone in our community should have to face going hungry. That’s why we provide three days’ nutritionally balanced emergency food and support to local people who are referred to us in crisis. We are part of a nationwide network of foodbanks, supported by The Trussell Trust, working to combat poverty and hunger across the UK.
  • Friday 27th September 2019 : 22:15 - 01:15

    The PTA is made up of the parents and teachers of children at Lindfield Primary Academy. Our main aim is to help enhance the children's experience at the Academy by raising funds for equipment, environments and other extras (that the Academy may not be able to fund with its budget) to make Lindfield Primary the best it can be for our children and future generations. We are very proud to be included in the top 5% of PTAs in the UK in terms of fundraising. Over the 2017/18 academic year we raised £32,000 for the Academy and have funded a new pond area, booster groups, climbing wall grips, playground equipment, benches and floor markings, author visits, sensory area, forest school container, maths subscription and lots of new books to name but a few. See our Fundraising page to see more of the things we’ve helped to fund and what we’ve raised at our Events. Our secondary aim is create, boost and enjoy a real community feeling for parents, teachers and the children. We aim to make our events as inclusive as possible so that they attract attention from the wider community as a whole and not just from within the school. Our events can range from specific fund raisers to more social events where you can meet other parents. We’d like to think we are a social bunch and are always ready to welcome new committee members or people who are willing to help out in any way. Once your child starts at Lindfield you become a member of the PTA. If you’d like to be more involved by becoming a committee member (and be able to vote on PTA decisions, including how the money we raise is used to fund projects) or offer to help in any way, please contact our Co-Chairs: You can also follow us on: Lindfield Primary School PTA @Lindfield_PTA lindfield_pta We hold 2/3 PTA Committee meetings a term. The next committee meeting date will be posted on Facebook, the PTA blackboards at the Academy and on the PTA notice board in the car park. They are usually held on a Tuesday and start at 8pm in the Community Room at the School. It’s always nice to see new faces so please feel free to come along and join us, everyone is welcome.
  • Friday 27th September 2019 : 19:00 - 22:00

    We help families in Sussex to overcome their difficulties and prevent crisis. We support families struggling with issues such as poverty, ill health, learning difficulties, bereavement, family break-up and domestic abuse.

    ONE-TO-ONE SUPPORT

    Family Support Practitioners visit families at home to provide one-to-one emotional and practical support. This includes listening, parenting advice, help to manage money, encouragement and support to find work, referral to specialist services, attending appointments and advocating for families, and providing food and clothing where needed. Playworkers undertake one-to-one structured play sessions, helping with children’s emotional and social development.

    GROUP ACTIVITIES

    Family Support Practitioners and Playworkers organise whole-family days out and weekend breaks to relieve family stress and improve family relationships. Twice a year, families have the opportunity for a supported weekend break at a local retreat centre. The weekends usually include games, crafts, a campfire and a talent show. Support Practitioners and the Play team also run a range of peer support groups, parent-child drop-ins, after school clubs and school holiday fun days. These help to ease isolation and provide informal support.
  • Saturday 28th September 2019 : 14:30 - 17:30

    Established in 1949, Eastbourne & District Mencap has been supporting local people with learning disabilities and their families for over 60 years. We provide a range of services from 24 hour residential care to day opportunities and family services. We are a local registered charity supported by the kind and generous people of Eastbourne. We are delighted to have more than 100 members who include people with learning disabilities, their families and those dedicated to supporting and improving the lives of people with learning disabilities. Our aim is to support people with learning disabilities, as valued members of society, to live a full and fulfilling life, with equal rights, responsibilities and opportunities. Our work is managed by a Board of Trustees who, together with 90 experienced and qualified staff and some volunteers, are dedicated to providing first class services. We work very closely with our partner agencies in Health and Social Care, continually improving and learning to ensure our services continue to be modern and effective.

    Who do we Support?

    There are many different types of learning disability. Some people with a mild learning disability do not need a lot of support in their lives. Others may need support with everyday things like going shopping, making choices or filling out forms. Some people may need extra support, especially if they also have a physical or sensory disability or have mental health problems. For more information about learning disabilities click here. We also recognise that the family of a person with a learning disability are very important to them. Services provided by any organisation are no substitute for family care and support which is why we encourage the involvement of families and friends of our residents and those in the community who use our services.

    We provide this support in a number of ways

    • We provide information on available services and how to access them
    • We are always ready to listen to carers and family members who need someone to talk to in confidence
    • We signpost people to appropriate agencies i.e. voluntary organisations and statutory bodies
    • We provide social and leisure opportunities at our day services
    • We hold occasional weekend and evening special events i.e. clubs, parties, discos, etc.
    Click here to find out more.
     

    Legal details about our organisation

    Eastbourne and District Mencap Limited is a company limited by guarantee Registered in England and Wales Company registration number 6182982 Registered Charity number 1125686 Registered Office: 113 Pevensey Road, Eastbourne, BN22 8AD. (Affiliated to Royal Mencap Society)
  • Sunday 29th September 2019 : 00:15 - 03:15

    Lymphoma is a complex type of cancer. Our award-winning information and publications can help you better understand your diagnosis, treatment and life beyond lymphoma.
    Lymphoma Action booklets give information on broad topic areas (for example they might cover all low-grade non-Hodgkin lymphomas and the types of treatment often given). They are professionally printed and bound and most are A5 size. We offer our lymphoma information free of charge in the UK. If you live outside the UK, we recommend that you contact the lymphoma patient and carer organisation in your country as treatments and healthcare systems vary overseas. You can find a list of which organisations might be of help in your country on the Lymphoma Coalition website. See booklets and information sheets available Order resources online from our shop 
    Lymphoma Action is committed to the provision of high quality information for people with lymphoma, their families and friends. We produce our information using nationally recognised guidelines, including the DISCERN tool for information about treatments, the NHS Toolkit for producing patient information, and the Campaign for Plain English guidelines. Lymphoma Action is a certified member of The Information Standard independent quality assurance scheme, which is supported by the Department of Health. Our publications are written by experienced medical writers, in close collaboration with medical advisers with expertise in the appropriate field. References are provided where academic texts have been used. information standard logo In some instances, our publications are funded by grants from pharmaceutical companies. These sponsors do not have any involvement in the content of a publication and have no editorial input. If you have any questions about our booklets please email us.
  • Sunday 29th September 2019 : 00:15 - 03:15

    In as much as you did it to the least of these you did it unto me” said Jesusp1110291. Matt25:40 Crossover started in 1997 and marks today over 19 years of work amongst the disadvantaged and homeless of Brighton and Hove by providing food and practical support where feasible. We’d love for you to partner with us in reaching those who are vulnerable and in doing so, enable us to continue responding to the call. The work was birthed out of Citycoast Trust in Portslade and some 10 years ago was further developed by Project Co-ordinators David and Linda Bolton who have previously initiated work projects and a community Charity shop which is still successfully running under separate management and is called Second Chance. Crossover is now entirely independent and has it’s own formal Charitable status (numbered 1153475) formed in August 2013. 2010 saw exciting developments for Crossover with the rebirth of St. Peter’s Church in York Place, Brighton right in the heart of the City. An opportunity arose for the already existing  Crossover Street feeding programme to relocate it’s venue from the streets and into the Church’s Hall. p1110172A joint feeding project named Safehaven was soon developed  early on in 2010 and was manned by a substantial group of volunteers resourced not only from Crossover but also St Peters Church and One Church.  This initiative is still operating as a St Peters Church Project during University term times and the venue is now in a warm carpeted Church!  Many volunteers are University students and because of this Safehaven can only effectively operate during the school/University terms. Crossover rP1000245ecognised a gap in services to those who are homeless on our streets all year-round and so we stepped in to fill the gap. With a much smaller group of volunteers Crossover Brighton pulls upon its many years of experience. We step back in to feed the guests with our catering van in St Peters Church car park with a project called S.A.S – Saturday at Six!  Early in  2014  wp1110602e recognised another gap – weekend breakfasts!  Statutory services provide support during the week but there is not breakfast provision at the weekend.  Crossover trialed Saturday morning breakfasts with our catering van.  this was an immediate success so we extended the service to include Sundays!  Currently we serve cooked breakfasts to between 30 and 50 guests each day 52 weeks a year.   P1000265 The 3:16 Catering Van Photography by Sandra Christofi Some volunteer opportunities are available see our Volunteering and Contact page. Mobile : 07766388660
  • Saturday 28th September: 2019 : 17:45 - 20:45

    Creating opportunities, Changing lives

    SASBAH was formed as an independent charity in 1965,  in response to the growing demand for support services for those with Spina Bifida and/or Hydrocephalus in Sussex.  Our mission is a simple one:

    Working with those in Sussex who have Spina Bifida and/or Hydrocephalus to create and develop their best opportunities
    Over half a century, we have gradually increased both our services and our membership, so that we now offer support for over 500 people of all ages in the counties of East and West Sussex, and Brighton and Hove.  We deliver a wide range of services and programmes, all based on needs identified by service users themselves, who are represented at all levels of our organisation up to Trustee level, where nearly half of the Trustees are themselves service users. Recently, we have extended some of our services to people with other disabilities, so that both they and those with the principal conditions we support can benefit from interaction with a wider group, and from the experience of the Sasbah staff. SASBAH is a tightly managed organisation, currently employing two full-time and 11 part-time paid staff, and with an extensive network of over 170  volunteers, who are trained in the conditions and are crucial to the delivery of such a wide range of services.  In addition, our Trustees exert a strong control over finances. It is a major strength of the organisation that we can achieve this incredible breadth and depth of service provision for an annual expenditure of just £230,000.
  • Saturday 28th September 2019 : 08:00 - 11:00

    For free and confidential information and advice call 0800 019 1310

    We offer impartial local information and advice on a range of topics relevant to everyone over 50 - everything from finding great social activities near you to help at home to care homes in West Sussex, welfare benefits and getting a blue badge. Just call us on 0800 019 1310 Our lines are open 10am-2pm Monday to Friday

    Age UK West Sussex offers a free and confidential information and advice service for people over 50, their families and carers.

    How to access the service

    You can access our information and advice service in a number of ways. By phone: 0800 019 1310 By email: information@ageukwestsussex.org.uk

    Opening times:

    Our information and advice officers are available Monday to Friday, 10am to 2pm.

    How we can help

    Our advisers provide up-to-date information and advice on a range of topics, inclduing:
    • Welfare Benefits
    • Housing Needs
    • Finding Help at Home
    • Health and Social Care
    • Family and Personal Matters
    • Leisure and Social Activities
    • Money Advice
    • Care Planning
    • Care at Home
    • Advice for Carers
    • Advising you of your rights
    • Most other things that affect the quality of your life

    What we will do

    • Provide you with information that is accurate and up-to-date
    • Explain the choices you have to enable you to make informed decisions
    • Take action on your behalf, if you need support
    • Point you in the right direction if we are unable to help

    Newtons and Sage House Appointments

    We also offer appointments at Newtons Health Practice - Haywards Heath and Sage House - Tangmere. We can help with:
    • Application forms for benefits
    • Blue Badge forms
    • Housing options
    • Money advice
    • Care issues
    • And all other enquiries that the information and advice service can help with
    Please call 0800 019 1310 or email: information@ageukwestsussex.org.uk to book an appointment. Newtons Health  Practice - This is by appointment only and operates the first Monday of the month. Sage House, Tangmere - This is by appointment only and operates the last Tuesday of the month. Appointments are held at: Newtons Health Practice, Heath Road, Haywards Heath, RH16 3BB Sage House, Salisbury House, City Fields Way, Tangmere, Chichester, PO20 2FP Please check with head office as we do sometimes add further surgeries to meet demand.

    Free booklets and online information

  • Sunday 29th September 2019 : 10:00 - 14:00       

    DiversiFest UK organises inclusive events with the aim of uniting people of different abilities through fun, music and dance. We guarantee that every event is wheelchair accessible, has Changing Places toilet facilities and incorporates a quieter space for those experiencing sensory overload. We aim to meet the individual needs of every attendee and can make additional provisions on request.
    Diversifest was founded in 2018 with a festival at the Dolphin leisure centre in Haywards Heath, starring Singing Hands, the Include Choir and Loki and raising money for Kangaroos and Chailey Heritage Foundation. Initially intended as a singular event, the interest levels were such that future plans were born and there are plans afoot for a host of new celebrations. Our mission is to break down barriers of ignorance and intolerance of disabilities by celebrating our similarities rather than focussing on our differences.
  • Sunday 29th September 2019 : 06:45 - 09:45

    Our Organisation was started in October 2013 for the local community. we help support families in the Burgess Hill, Hassocks, Hurstpierpoint and Haywards Heath areas. we have started up a food pantry for families for when times are very bad and they have not got enough food and they cannot go to the food bank We have a christmas party for the under priviliged chldren in the area . We are looking to get lots of toys so that the children can visit Santa at the party where they get some lovely presents to take home for Christmas day, as most of these children will have very few if any presents at Christmas time for whatever reason. please please give these kids a nice xmas this year instead of one with no presents and no festive dinner.
  • Saturday 28th September 2019 : 08:00 - 11:00

    Forward Facing is a charity based in Sussex that supports families whose children are living with long-term or life-limiting conditions or those who have suffered bereavement or hardship. We help families by putting on free special events where they can forget their daily struggles, have fun, express their personalities and most importantly, make lasting memories. We support not only the children, but also their parents, carers, siblings and extended families.
  • Saturday 28th September 2019 : 21:00 - 00:00

    We are a unique charity providing 'Nursing Care at Home' for local children who have a life-threatening illness or may be terminally ill. Based in the Chichester area of West Sussex, The Sussex Snowdrop Trust provides:
      • Children's Community Nurses Children's Community Nurses administer medication and perform various procedures when the Snowdrop child is at home. They give medical advice, teach parents how to manage their child's medicines and treatments, listen to problems and liaise with other Health Professionals.
      • Nurse Support Workers Some children benefit from being taken to local parks, attractions etc. by the Nurse Support Workers and they really look forward to seeing these nurses and develop a wonderful bond. These precious hours give mothers a short break during the week which allows time for themselves or for their other children.
      • Emotional support which is met by the Snowdrop Counsellor. When a child is diagnosed with a life threatening or terminal illness, the Snowdrop Counsellor will visit the family with a Paediatric Community Nurse and explain that he is available to talk to them, when they are ready.
      • Financial help for families coping with the day-to-day problems of caring for a very sick child. Most mothers, sometimes fathers, have to give up work when their child becomes ill. The added pressure of trying to find the money for petrol to make those all important trips to hospital or being able to feed the family, can be overwhelming. Requests for help are made through the Community Nurses and Counsellor.
      Please browse our website to find out more about what we do and how you can help us to help others.
  • Saturday 28th September 2019 : 21:00 - 00:00

    Home-Start volunteers help local families with young children deal with the challenges they face.
    We support parents as they learn to cope, improve their confidence and build better lives for their children.

    Supporting families

    At the heart of our work is home visiting volunteer support.
    Families struggling with post-natal depression, isolation, physical health problems, bereavement and many other issues receive the support of a volunteer who will spend around two hours a week in a family’s home supporting them in the ways they need. We also run weekly ‘Twiglets’ groups, for families with multiple birth children under the age of 4 to come together and participate in planned activities and free play.

    Why it matters

    The five years between birth and school are vital for a child’s development. What goes on inside a family strongly determines the opportunities and life chances children have.
    Children who are raised in a stable, loving, family environment are more likely to have a positive and healthy future. Home-Start works because our volunteers are parents. They understand how hard it can be. They work alongside parents to help them cope with the stresses and strains of life and make sure they have the skills, confidence and strength they need to nurture their children.

    Our impact

    Last year (2017/18) we supported 313 children in 134 families across Crawley, Horsham & Mid-Sussex. Our volunteers give practical and emotional support to parents to help them overcome the challenges they are facing and give their young children the best possible start in life.

    Our support means:

    98% of parents' health and well-being improved
    97% of parents felt more involved in their children’s development
    95% of families felt their children’s emotional and physical health and well-being had improved
    95% of parents felt more able to cope with the day-to-day running of the house
    Results from monitoring of our impact on the families we supported in 2015/16.
  • Saturday 28th September 2019 : 14:30 - 17:30

    The Seahorses Swimming Club encourages, promotes and develops swimming amongst less able people in Haywards Heath and the surrounding areas.
    About
    Swimming Club for individuals with special needs and/or physical disabilities, held every Tuesday evening at the Dolphin. Registered Charity 286290
    The Seahorses Swimming Club was set up over 35 years ago and runs every Tuesday evening at the Dolphin Leisure Centre, a much-loved Club where individuals with a range of special needs and physical disabilities come together to exercise and socialise. Swimming starts at 6:15pm, although many of our members arrive before this time, and continues through to 7:45pm, after which members can socialise in the cafe over food and drink. We tend to follow a swimming routine throughout the year - Club night is essentially a 'working night' Members can choose to follow a swimming programme or their own pursuit. Even for able-bodied people, finding time to exercise can be difficult. For our members, exercise is even more important and they are encouraged to take the opportunity to experience quite a thorough workout if they so wish. The Club examines for distance and water skills awards operated by NASCH (The National Association of Swimming Clubs for the Handicapped) the STA (The Swimming Teachers' Association) and the ASA (The Amateur Swimming Association). Distance awards range from 5 to 5000m in a continuous swim. The ASA also promotes a Swimfit scheme which extends to 1500 miles, but these are cumulative distances. The Club has gained hundreds of badges in previous years. To see a less able swimmer achieve their first length or maybe discard their buoyancy aids is the very reason why the Club exists. Periodically, we include fun and serious swimming galas, sponsored swims and the annual Club Championships. For many years we have taken part in (and continue to do so!) the Lions Club Swimarathon on Good Friday. In recent years we have also taken part in the Mid Sussex Marlins Disability Gala, competing against 6 other Clubs from Mid Sussex. People's disabilities have definitely changed over the last decades, from physical to mental - but all are welcome at Seahorses. Less able members literally go hand in hand with our helpers. We have a small number of very committed and willing helpers who, week by week, bring their expertise and patience for the benefit of the Club. More help is always welcome on a Tuesday evening and if you have enthusiasm and patience, Seahorses would definitely like to hear from you. It is really encouraging to see that quite a number of our swimmers and helpers have been with our Club for many years. We have an annual sponsored swim and a stall at Lindfield Village Day. The money raised at these two evnents goes towards the upkeep of our minibus and general Club funds. From time to time we also receive sponsorship from local companies. The Club has approximately 50 members on its books, including a mix of less-able and able-bodied individuals. They range in age from early teens to 80+ years of age. The Club serves the community by recognising the immense value of swimming in the process of physical and psychological rehabilitation of less able people. An essential feature of the Club is the minibus, which is used to transport membesr from Burgess Hill, Cuckfield, Lindfield and Haywards Heath for the Tuesday evening sessions. In 1995, the Seahorses undertook to raise a substantial amount of money for a new minibus. With generous donations from many local firms, a sponsored 'Channel Swim' of 22 miles undertaken by Club members at the Leisure Centre pool in a single evening and a grant of £22,500 from the National Lottery, we achieved this target. That yellow minibus (which many local supporters of this page may well have seen driving around Mid Sussex on their travels) gave us 19 years of regular service transporting members to and from both the Club on a Tuesday evening and galas further afield, before succumbing to old age. The Club is currently looking to raise funds towards the cost of a new vehicle, which has space for at least one wheelchair, for use on a weekly basis transporting members to and from the Tuesday night sessions, as well as occasional weekend galas and outings. Seahorses Swimming Club would be very grateful to receive donations towards the cost of a new minibus so that our swimming sessions can continue to be enjoyed by those that need them most. In 2016, the Seahorses Swimming Club celebrates 35 years of service to the local community through swimming! 'Like' our page and find out more about our Club, its members, the galas we attend throughout the county and social events we organise to help us raise valuable funds towards the cost of a new minibus.
  • Saturday 28th September 2019 : 04:45 - 07:45

    qA massive range with a personal touch

    Here at CHEC, we are proud to bring a unique level of personalisation to everything we do. Whether you want a hundred garments or just a single t-shirt, we are able to spend time working with our customers to create an end result that’s just right for them. If you have a clear idea of what you want, we are happy working with you to make that a reality. If you have only a vague notion of a finished design, CHEC’s design team are more than willing to come up with samples and suggestions to help you realise your vision.
    Your ideal, personalised products are only a phone call or click away.
    CHEC was opened in 1995 to provide a professional working environment for young, physically disabled people who had left formal education and experienced problems accessing open employment because of their disability. Today CHEC’s objectives remain the same, to help people develop a meaningful career who would otherwise have difficulty obtaining employment. The Centre offers disabled people the opportunity to work as a team, designing, manufacturing and marketing a range of gifts and promotional items. We use a variety of printing processes and also have an embroidery machine. All work is done on site and our office is split between the design area and the production area. Products are mainly sold to local customers including individuals, businesses, clubs and societies, but are also available for national distribution. People who attend the centre contribute to the business in many different ways including computer design, computer controlled embroidery, press operation, producing marketing material and general office duties such as word processing and filing.
     
  • Sunday 29th September 2019 : 03:30 - 06:30

    PTEN Hamartoma Tumour Syndrome (PHTS, often shortened to PTEN) is a rare genetic condition. It is thought to affect around 200-300 people in the UK, although the number of patients identified is about 150 (as of July 2017). It is caused by an alteration of the genetic code in a gene called PTEN. This is an abbreviation of its full name: Phosphatase And Tensin Homolog. Alterations are sometimes passed down from parent to child, and sometimes the alteration is spontaneous (de novo).   Sometimes referred to by its older classifications of Cowden Syndrome (CS) or Bannayan Riley Ruvulcaba Syndrome (BRRS), these syndromes (collection of symptoms) were first identified in the years before the development of genetic testing. Following the discovery that these different conditions were caused by the same gene, they were amalgamated under one name; PHTS or PTEN Hamartoma Tumour Syndrome.   There is a wide range of symptoms associated with the condition which can vary considerably in severity. When recognised in children it can account for issues such as a big head (macrocephaly) , developmental delay, and autism. There is an increased risk of certain types of cancer in adults. People with the condition may have other problems affecting their skin including unusual pigmentation and wart-like lesions. Some people have fatty lumps called lipomas or overgrowth of blood vessels (arterio-venous malformations).   If you are waiting for a diagnosis, are newly diagnosed, or just have suspicions, please take a look at our “New to PHTS” page. More detailed information can be found on our “On Diagnosis” page.   There is no current treatment or cure. Patients are managed according to their symptoms. Doctors will discuss appropriate cancer surveillance for each person. Research is ongoing to try to understand the variability and to try to identify treatments and therapies. More information can be found on the PTEN Research Foundation website – www.ptenresearch.org.  

    About PTENUKI

    Welcome to PTENUKI, the PTEN UK and Ireland Patient Group. The first PTEN / PHTS patient meeting in the UK was in Winchester in September 2015, and throughout 2016 a number of additional meetings and conversations led to the coming together of several patients, family members and professionals, and to the registering of the patient group as a UK based charity (Registered Charity: 1172205) on 22nd March 2017. Our Vision The patient group’s purpose is to improve the lives of patients, parents and carers of all ages, in the United Kingdom and Ireland, who are affected by PTEN genetic alterations, PTEN Hamartoma Tumour Syndrome (PHTS), Cowden Syndrome (CS), or Bannayan-Riley-Ruvalcaba Syndrome (BRRS) through better patient support, increased awareness, more accurate and accessible information, earlier diagnosis and intervention, greater research into treatment and prevention, and improved coordination of care. Our Official Charitable Objects 1. Patient Support – To promote and protect the health of persons affected by PTEN Hamartoma Tumour Syndrome and related syndromes in the UK and Ireland by the provision of support, information and practical advice for such persons, their families and carers. 2. Improved Healthcare – To improve the healthcare of persons affected by PTEN Hamartoma Tumour Syndrome and related syndromes in the UK and Ireland through advancing the education and awareness of medical professionals and the general public 3. Research – To support and promote research, especially but not exclusively into the diagnosis, treatment and prevention of PTEN Hamartoma Tumour Syndrome and related syndromes in the UK and Ireland    
  • Saturday 28th September: 2019 : 17:45 - 20:45

    Group B Strep Support (also known as GBSS) is a charity registered in the UK dedicated to working to stop group B Strep infections, including meningitis, in babies.  Our goal is the eradication of group B Strep infection in babies.

    We are very grateful to all who support the charity and help to continue its vital work.

    Group B Strep Support (GBSS) exists to provide up to date and evidence based information on group B Strep to new and expectant parents and their health professionals, and support to affected families. GBSS is the only UK charity dedicated to working to stop group B Strep infections, including meningitis, in babies.  Our goal is the eradication of group B Strep infection in babies. We are still far from that – the UK rate of group B Strep infection in babies rose by 31% overall, and by 19% in the potentially preventable early-onset (age 0-6 days) group B Strep infections between 2000 and 2015.

    Our Aims

    We want every woman to be informed about group B Strep and offered the opportunity to have a sensitive (ECM) test to detect GBS carriage late in pregnancy. The results of these tests can then be used to inform as to what further treatment may be needed, if any, to minimise the risk of GBS infection in the newborn baby. Unfortunately, sensitive ECM tests are not yet widely available within the NHS (click here for more information about the tests available), although they are available privately (and cost approximately £35). Longer term, vaccination could prevent more cases of GBS infection than any other strategy, including preventing preterm labour and stillbirths caused by GBS infection, post-delivery GBS infection in the mother and late-onset GBS infection in the baby. Vaccination would also avoid allergic reactions to the recommended antibiotics and concern about the emergence of antibiotic resistant bacteria. Moreover, there are no indications of hazard in this approach. Investment into developing a vaccine against GBS infection is urgently needed and should be prioritised. At present, with no vaccine available, the view of the charity and its medical advisory panel is that the best way to prevent group B Strep infections in newborn babies in the UK is:
    • Every pregnant woman should be given information on group B Strep as a routine part of her antenatal care.
    • Every low-risk pregnant woman to be offered a sensitive test for GBS colonisation at 35-37 weeks of pregnancy without charge (and, where these tests are not freely available, all pregnant women should be told that these tests are available privately – click here for information on GBS test availability).
    • Every higher-risk pregnant woman (those identified as carrying GBS, those who have had a baby with GBS disease, and those where recognised risk factors are present) to be offered intravenous antibiotics from the start of labour until delivery. For those women whose babies are at highest risk to be recommended to have intravenous antibiotics at the start of labour.
    While we believe this would prevent more GBS infection, disability and death in newborn babies, it is the UK National Screening Committee’s responsibility to recommend for or against screening. Sadly, despite most developed countries using the screening approach to GBS prevention and seeing major reductions, the UK NSC has rejected international evidence. Their next planned review is 2019/20
  • Sunday 29th September 2019 : 10:00 - 14:00       

    Mid-Downs Radio celebrates over 40 years of Hospital Broadcasting!

    From small beginnings in a broom cupboard at Cuckfield Hospital,

    (with a converted caravan for events), to a much larger storage room turned

    into two Radio Studios at the Princess Royal, (and a beautifully decorated

    and professional events unit).  That sums up where history has taken

    us over the years.

    Thanks to the MDR Committees (past and present), fundraising teams and

    support from the Mid-Sussex community at all our events and the Lottery

    Commission, plus BSUH Hospital Board, League of Friends of the PRH and

    Hurstwood Park Neurological Centre, local councils and businesses,

    we have continued to improve our standards over the years.

    We now have really up to date equipment in both the studios,

    (new Myriad computer system), and the Outside Events Unit,

    (new PA and mic system).  Gary looks after all the Radio Station’s

    engineering and technical needs. PrincessRoyal HospitalRadio

    Our new aerial, (the old one was destroyed in a car accident!)

    has improved the strength and clarity of our broadcasts.

    With pre-recorded programmes joining the live shows, we can be heard

    24hrs a day, 365 days a year, with a variety of music, chat, news and

    Hospital/Health information.  We feature specialist programmes such as

    celebrity/local interest interviews from Wendy on Wednesday afternoons.  

    The Passive Speaker system in the waiting areas, including the WRVS shop

    and the League of Friends coffee shop, staff personal radios and the

    Hospedia bedside units, have helped MDR become the most listened

    to radio station in our corner of Mid-Sussex.

    So, the future is looking bright for Mid-Downs Radio, come and join us!

  • Saturday 28th September 2019 : 01:30 - 04:30

    We’re a local charity with a big ambition: to help everyone face death informed, supported and pain free. Providing expert hospice care, we’re there for people in West Sussex and East Surrey when life comes full circle. We also pioneer standards in end of life care through collaboration, research and training, reaching even more people facing death and bereavement.

    What We Do

    We’re there for people in Sussex and East Surrey, with expert hospice care, when and where they need us most. Our skilled teams are on hand to support people living with terminal illness in their homes, at our Day Hospice and on our wards.

    Tailored care

    It could be a bath, a favourite meal, or helping someone manage their pain. For us, hospice care is whatever our patients and those closest to them need it to be. It’s different for everyone, and we empower our patients to make their own decisions whenever they can. We also give emotional, spiritual and welfare support to anyone affected by death and bereavement.

    Pioneering standards

    St Catherine’s Hospice was established in 1983 and we are experts in end of life care. We’re the leading provider of hospice care in Sussex and East Surrey, helping around 2,100 terminally ill people, their family members, friends, and carers each year. We believe that we are better and stronger together and so also offer specialist training, take part in research and work with the wider sector to pioneer standards in palliative care and support.

    Community generosity

    Our care is only possible thanks to the generosity of our local community who donate to and volunteer with us. Each year around £7.5 million is donated by our supporters and more than 1,000 people volunteer to help give our tailored care when people need us most. Community support means we’re there when life comes full circle. To find out how you can be part of our life-changing work, visit our support us pages.
  • Saturday 28th September 2019 : 21:00 - 00:00

    Little LifeSavers is a charitable organisation born from the drop-in sessions teaching Basic Life Support (BLS) skills including management of choking children/ Child Cardio Pulmonary Resuscitation (CPR) / Adult CPR and the Recovery Position organised by Dr Barbara Stanley (consultant anaesthetist) and delivered by junior doctors in West Sussex during the Junior Doctors Strike Action. It comes from a desire to disseminate widely the vital skill of providing effective CPR to members of the public – especially school children so as to generate a “nation of lifesavers”.   One of the children who attended the drop-in CPR session told his school about it and the head teacher made the first request. And so Little LifeSavers was born. Little Life Savers was established as a charity in September 2016.  During the first six months Little Life Savers delivered Basic Life Support Skills Training throughout West Sussex.  After this word began to spread and Little Life Savers groups began to be set up across the UK.  In May 2017 Little Life Savers was featured on ITV’s This Morning.  Little Life Savers continues to grow with new groups being established all the time our nation of Little Life Savers continues to get bigger and the chances of bystander CPR increases.

    THE EVIDENCE FOR CPR TRAINING

    Out of Hospital Cardiac Arrest (OOHCA) means there can be a long gap between the time the heart stops and the time CPR is started unless a bystander (a member of the public) intervenes. Once the brain has been starved of oxygen for three minutes or longer permanent damage can occur and every minute the heart does not beat the chances of success of CPR attempts reduces. Initiatives in countries such as Denmark have addressed this problem and successful outcomes after OOHCA have subsequently doubled. Giving young people the confidence and skill to intervene in such an important way is life- saving. Witnessed OOHCA can be given the maximal chance of success if we empower the public to act. 13 year old Christopher Sears died when he had an epileptic seizure on the school bus. He was sat upright in his seat and from the report it appears he stopped breathing and obstructed his airway. None of his fellow pupils (or bus driver) knew how to help him.
  • Saturday 28th September 2019 : 11:15 - 14:15

    Who Are We? Jane’s Wish is a brand new charitable organisation with the purpose of organising and funding days out / activities for children affected by cancer in Sussex. We hope to enrich thousands of young lives and bring a smile to those who need it most.

    Why We're Here

    Jane Manuel was an inspiring mum, sister and daughter from Horsham, West Sussex.  She sadly lost the battle with cancer in 2004 however even during her illness she would go on days out and short breaks, as she was determined to create that special family time despite of the circumstances.   This is what drives the vision of Jane’s Wish!

    Help Out

    If you would like to get in touch for any reason, be it volunteering, donating or sharing your stories, please contact us on Facebook. We look forward to hearing from you.

  • Sunday 29th September 2019 : 10:00 - 14:00       

    The group is to reach out to people who live with Fibromyalgia, M.E. and associated conditions. We aim to support people with chronic illness and offer information and guidance where needed. If you or someone in your family unit or a friend are having to cope with Fibromyalgia, M.E. or an associated condition, we welcome you to contact us. Email: ebournefibrosupport@live.com Please feel free to share ideas and comments. Any questions or advice you require just ask and either the admins or another member will do their best to assist you. Disclaimer: Eastbourne Fibro/M.E. Support Group does not endorse or recommend any particular treatment, therapy or practioner. Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional. Anyone associated with Eastbourne Fibro/M.E. Support Group cannot be held liable for any information given, or results of therapies, treatments etc. which may be discussed or presented in communications originating from Eastbourne Fibro/M.E. Support Group . Views expressed are not necessarily those of Eastbourne Fibro/M.E. Support Group volunteers and its members. The accuracy of any information given is not guaranteed: you should always make your own full enquiries before acting on such information. Where links are made to other websites or mention made of other organisations, these are provided for information only.Eastbourne Fibro/M.E. Support Group may not support or endorse any information. Services or treatments which may be encountered as a result of visiting or contacting them. You should always make your own full enquiries before taking action. Eastbourne Fibro/M.E. Support Group cannot accept any responsibility for any comments attributed to it by any other source.
  • Friday 27th September 2019 : 19:00 - 22:00

    Sands is the stillbirth and neonatal death charity. We operate throughout the UK, supporting anyone affected by the death of a baby, working to improve the care bereaved parents receive, and promoting research to reduce the loss of babies’ lives.

    How Sands is making a difference

    Sands, making a difference, charity, 15 babies a day
    We provide free support to anyone affected by the death of a baby through our national helpline, forum and network of support groups. We train thousands of midwives, doctors and other professionals so that they can provide the care and support parents desperately need when their baby has died. We are pioneering a National Bereavement Care Pathway that would make providing excellent bereavement care a priority for all hospitals. And we fund research to reduce the number of babies who die every day in the UK. But there is much more work to be done.
     

    A world where fewer babies die

    Our vision is a world where fewer babies die and every bereaved family gets the care and support they need for as long as they need it. By 2020 we aim to reduce the number of babies dying by at least 20%, and we urgently need to fund research to better understand what causes these deaths. We also want every bereaved parent to receive a free memory box to collect keepsakes to help them remember their precious baby.

    You can help save babies’ lives

    We are leading this fight but we can only make our vision a reality with your help.
    donate to sands
    Donate to Sands today By donating to Sands you will help us support parents, train professionals and save babies' lives today and in the future.
    fundraising, sands
    Fundraise for Sands We rely on the generosity of our supporters to fund everything we do. Find out more about fundraising for Sands and how we can support your journey.
    sands, volunteer
    Volunteer with Sands Sands could not achieve its goals without our team of incredibly dedicated volunteers. There are lots of ways to get involved.
     
  • Sunday 29th September 2019 : 03:30 - 06:30

    Sussex Oakleaf provides a range of support services to people with mental health needs, those with a personality disorder and individuals at risk of homelessness.

    We empower people and promote independence by providing recovery focused community wellbeing services, residential care, peer mentoring, housing support and volunteering opportunities.

    About us

    Sussex Oakleaf provide a range of support services to people with mental health needs, those with a personality disorder and individuals at risk of homelessness. We empower people and promote independence by providing recovery focussed community wellbeing services, residential care, peer mentoring, housing support and volunteering opportunities.

    Our vision……

    is for a world where people with mental illness and mental health issues are inspired and supported to fulfil their potential and to live their lives as independently as possible.

    Our mission…

    …is to be a dynamic, co-productive organisation which delivers these outcomes:
    • Promotes mental, physical and social wellbeing for people with mental health issues through recovery-based support in housing and in communities
    • Encourages the development of confidence and skills in the people we work with, through access to opportunities including independent living, employment, volunteering and learning – improving outcomes for people
    • Innovates and is the partner and provider of choice for clients, commissioners and others in excellent community based support and services

    Our values…

    …underpin the way we work, inform our decisions as an organisation and enable us to be the best that we can be. Our values are based on five key principles: Personalised Our approach to our work puts people and their ideas, aspirations and objectives for their lives at the heart of everything that we do, treating everybody with dignity and respect. Inspiring Positive Change We develop and deliver pathways and services to enable people to recover their health, wellbeing and independence – and communicate and share them widely. Promoting the Value of Lived Experience and Community Benefit We actively encourage and involve the communities and people with whom we work to create positive change, through peer leadership and peer support. Diversity and Difference We value everyone’s contribution and embrace individuality. Knowledge and Learning We promote innovation, research, good practice and continuous improvement by supporting our people and our clients to use all their skills and to develop new ones to enable personal and organisational growth.
  • Saturday 28th September 2019 : 04:45 - 07:45

    The League of Friends is a registered charity which raises funds to provide equipment and support projects that improve the facilities at the Princess Royal Hospital. These endeavours help to improve the care and comfort of patients, visitors and staff

    The League of Friends is run by volunteers and all of the money raised and donated is used entirely for the benefit of the Princess Royal Hospital. Many local organisations and businesses raise funds for the hospital. Generous donations from grateful patients, collections and legacies are further important sources of funding. In addition, the League of Friends continues to organise fundraising events. Please support the League of Friends so that we can continue this good work for the benefit of the hospital community.

    The League of Friends was established in 1956 as the Friends of Cuckfield Hospital, which was then the General Hospital for Mid-Sussex

    In June 1991 services were transferred from Cuckfield to the new Mid-Sussex General Hospital. The new hospital was officially opened in September 1991 by HRH Princess Anne and it then became the Princess Royal Hospital. Subsequently our organisation became the League of Friends of the Princess Royal Hospital, with a revised constitution, incorporating the previously separate Leagues supporting St Francis and Haywards Heath hospitals.

    The main objectives of the League of Friends are:

    1. To supplement the services of the hospital for the health, welfare and comfort of the patients by the provision of facilities, buildings and equipment, which may be required for the treatment of the patients or for the running of the hospital
    2. To provide or assist in the provision of amenities in the hospital for patients and staff including the provision and operation of the hospital coffee shop.

    Executive Committee of the League of Friends of the Princess Royal Hospital

    Chair: Mercedes Madden Treasurer: Andrew Fox David Robins Michael Lavelle Michael West Eacott Audrie Gog Susan Harding Peggy Guggenheim  
  • Saturday 28th September 2019 : 01:30 - 04:30

    About Us

    We are The Starr Trust, registered Charity no. 1127497, formed to support young people to fulfill their potential. We are an independent, family run charity. Our income comes entirely from community fundraising and events, and donations from generous companies and individuals.

    Our Mission

    To support young people aged 10 –18 to fulfil their potential through sports, arts and education, by giving a helping hand to achieve their goals at a time when they really need it. We provide:
    • financial grants up to £5000 for young people in need living in the BN post code area of the UK (Edward Starr Awards)
    • training and development of skills
    • connections and mentoring
    We do this through local fundraising, events, creating local networks of mentors and other interested professionals, providing opportunities for training and skills sharing and connecting communities locally and around the world. We aim to encourage independent thinking, entrepreneurship and a social conscience in young people through all our activities.

    Our Vision

    We believe in a world in which young people are supported to achieve their fullest potential; where they flourish as individuals whilst making a positive contribution to their community, and in turn are recognised for their achievements.